DisclosureLens
PhysicalOtherLossCustomer Data InvolvedIdentity (basic)Financial accountPIILowContained

Huntington's Disease Society of America

bd_b2db70e63cebd391 · schema v1 · pii pii-v1

Severity

Low

Discovered

Oct 2, 2013

Filed

Dec 13, 2013

To disclose

10 weeks

Affected

1state residents only

Confidence

66%
Full breach record for Huntington's Disease Society of America3 incidents on file

HDSA reported the loss of a thumb drive containing donor PII (names, addresses, check photocopies, credit card numbers) between Nov 2012 and Sep 2013. The device was misplaced by a chapter treasurer. HDSA confirmed data was uploaded to its extranet, ensuring a complete copy exists. No evidence of unauthorized access was found. One NH resident affected. HDSA engaged legal counsel, notified insurers, and offered credit monitoring.

Incident timeline

undetected · 335 days
discovery → filing · 10 weeks / 72 days

Nov 1, 2012

Begins

Oct 2, 2013

Discovered

Dec 13, 2013

Filed

vs. sector median

+2 wks slower

Tracked as a single-filing incident — the only disclosure on record for this event so far.Confirmed1 affectedView incident

Evidence ladder

Leak-site claim

Attacker assertion only. Establishes: claim date, group, alleged victim.

Press / market report

Unlocks: incident narrative, operational impact. Still no compliance clock.

State AG / regulator filingThis record

Unlocks: discovery date, data types, affected count, compliance clock.

SEC 8-K / victim statement

Unlocks: materiality, stated response, full audit trail. Ceiling removed.